The Thalassemia Support Foundation is a non-profit organization that was founded by patients, parents, and friends affected by Thalassemia. Our primary goal is to help improve the quality of life for all patients with this terrible disease. And with your help and support, we can make that a reality!

Latest News

02.22.2009 - 3rd Thalassemia Support Foundation Conference (Click here) The 3rd Thalassemia Support Foundation Conference will be held on September 12, 2009 at the Beverly Garland's Holiday Inn in North Hollywood, California. To learn more about the event, please visit the event page here. The event page will be updated, so please check back regularly.
02.01.2009 - TSF Helps Fund Thalassemia Retreat The annual thalassemia retreat was held on November 14-16th in Russian River, California. Twenty five, thalassemia patients, some of them joining for the first time, (including people from Alaska and Ohio) and their spouses, significant others, children, and friends attended the retreat and enjoyed a weekend of bonding with friends, both old and new; sharing culinary talents; playing games; and sharing personal stories while giving and gaining support. Tears, laughter, and many hugs abound and when Sunday morning came and it was time to leave the sense of community and positive feelings were incredible. Read an article by Abby Thorelson, a patient who attended the retreat (Click here)
02.01.2009 - TSF Helps Fund Children's Hospital Oakland Holiday Party On December 14, 2008, 175 patients and families with thalassemia, friends of the program, and staff, gathered together for the annual Thalassemia Holiday Party at Children’s Hospital and Research Center Oakland. The Outpatient Center atrium was transformed into Little Italy to celebrate this year’s theme “Viva Italia.” Italian food was catered by pasta Pomadoro and Panda Express donated delicious Chinese appetizers. Highlights included the Italian Ice cart, holiday craft projects, and entertainment by the Amazing Tap Dancing Santa’s. All patients and siblings had a memorable time visiting Santa and Mrs. Clause who were generous enough to bring an abundance of gifts.
02.03.2008 - Thalassemia Patients Can Receive $100 for Online Discussion Panel Intelligence is looking for Thalassemia Patients in the United Kingdom, France, Germany, Italy and Spain to join an online discussion to explore opportunities for better patient care and communication. They will happily offer an honorarium of $100.00 for your full participation. Click here for more information. Note: The Thalassemia Support Foundation has no association with Panel Intelligence and is only posting as a service to our patients.
11.06.2007 - TSF Visits the Lotus Festival On July 14th, members of our group attended the Lotus Festival at Echo Park in Los Angeles. This event is held every year free to the public to bring entertainment and public awareness of many community services that are available to them... more
	Left to Right: Thomas Cheng (Cooley's Anemia - California Chapter), Carmen DiLorenzo (Fundraising Chair), Vincie DiLorenzo (Volunteer), Paul DiLorenzo (President)
07.14.2007 - Dr. Elliott Vichinsky: Comprehensive Medical Care in Thalassemia (Click here) During the conference we captured Dr. Elliott Vichinsky's Powerpoint presentation as well as the audio. View his presentation! A Java enabled web browser is required
	Dr. Elliott Vichinsky, MD Director, Hematology/Oncology Children's Hospital & Research Center at Oakland
05.28.2007 - Dr. John Wood: Pulmonary Hypertension and Good Cardiac Care (Click here) During the conference we captured Dr. John Wood's Powerpoint presentation as well as the audio. View his presentation! A Java enabled web browser is required
	Dr. John Wood, MD
05.21.2007 - ***UPDATED*** - 2nd Annual TSF Conference (Click here) Over 90 patients, parents, loved ones, and members of the medical community attended The 2nd Annual Thalassemia Support Foundation Conference. It was a jam packed day with speakers such as Nancy Sweeters, Dr. John Wood, and Dr. Elliott Vichinkey. Also, a panel session on psychosocial issues was moderated by Bryce Imbler from Childrens Hospital Los Angeles. Finally, we had breakout sessions for patients, parents, and loved ones. We finished the day with a reception with cocktails and hors d' oeuvres.
	Frank Gulko with daughter Olivia Gulko
02.04.2007 - Pictures from the 1st Annual TSF Conference (Click here)
01.29.2007 - ***UPDATED*** - 2nd Annual TSF Conference (Click here) The 2nd Annual Thalassemia Support Foundation event page has been updated. The schedule of events has been posted as well as the invitation and registration form. You are now able to download, fill out, and send back the registration form to attend this wonderful conference. And, of course, PATIENTS ARE FREE!!!
11.28.2006 - 2nd Annual Thalassemia Support Foundation Conference (Click here) The 2nd Annual Thalassemia Support Foundation Conference will be held on April 21st, 2007 at the Beverly Garland's Holiday Inn in North Hollywood, California. To learn more about the event, please visit the event page here. The event page will be updated, so please check back regularly.
11.26.2006 - A New Logo and a Brand New Look! After months of discussion and reviewing many different logos we have finally decided on our new logo. To commemorate this occasion, we have changed the look of our website to better fit with the colors of our new logo. We hope you like the changes!
08.20.2006 - 1st Issue of the TSF Newsletter is posted! (Click here)
06.11.2006 - New Profile of Tania Hunt (Click here) Patricia Saia, a board member, interviewed Tania Hunt, a 30 year old veterniarian with Beta Thalassemia intermediate. Tania talks about how she has dealt with Thalassemia, how her parents encouraged her over the years, and what advice she has for other Thalassemia patients. Please read this wonderful interview of a patient who has achieved her dreams in spite of all her struggles.
	Tania Hunt
06.09.2006 - New Article by Titi Singer, MD (Click here) Titi Singer, a Hemotologist at the Children's Hospital and Research Center at Oakland, discusses the many facets of iron overload for Thalassemia patients.
02.26.2006 - 1st Annual Thalassemia Educational Conference The Thalassemia Support Foundation (TSF), along with the Childrens Hospital Los Angeles (CHLA), is proud to present the 1st Annual Thalassemia Educational Conference. The event will take place on Saturday, April 1st from 8:30 to 2:00 pm in the Page Conference room at CHLA. To learn more, click here.
11.03.2005 - * * * FDA Approves Oral Iron Chelator, Exjade(R). * * * "Novartis announced today the first approval worldwide for Exjade(R) (deferasirox) -- the first and only once-daily oral iron chelator -- by the U.S. Food and Drug Administration. Exjade has been approved for the treatment of chronic iron overload due to blood transfusions in adults and children age two and older." Click here for full Press Release Novartis Website
10.16.2005 - New Article by Laurice Levine (Click here) Laurice Levine, the Thalassemia Outreach Coordinator at the Children's Hospital and Research Center at Oakland, presented at the 8th Cooley's Anemia Symposium, organized by the New York Academy of Sciences and the Cooley's Anemia Foundation. At the symposium, Laurice talked about Adult Thalassemics in a talk titled, "Caring for Adult Thalassemics in a Pediatric World." (Learn more and hear her talk here) Because she is such a nice person, she wrote an article for us concerning the care of adult thalassemics. You can read the article here. I hope everyone will take the time to read it and gain important insight and knowledge from a woman who has contributed so much to the thalassemia community. Enjoy!!!
Archived News