Informational Packet
April 20, 2006 Leave a Comment
Click to download:Â Thalassemia Support Foundation Packet
Informational Brochure
April 20, 2006 Leave a Comment
Click to download:Â Thalassemia Support Foundation Brochure
1st Thalassemia Support Foundation Conference
April 1, 2006 Leave a Comment
Over 50 patients, parents, loved ones, and members of the medical community attended the 1st Annual TSF Conference. Attendees learned about the new oral chelator, Exjade, along with other important topics in the Thalassemia community. Guest speakers included Dr. Thomas Coates, Dr. Punam Malik, and Susan Carson, R.N. Morning refreshments and lunch was served to all attendees. Read more of this post
Care for Adult Thalassemics
October 16, 2005 Leave a Comment
by Laurice Levine, MA, CCLS
Thalssemia Outreach Coordinator
Children’s Hospital and Research Center at Oakland
(Click here to see Laurice’s talk at the 8th Cooley’s Anemia Symposium)
Thalassemia is a rare and complex disease which in the past took the lives of children prior to their teenage years. Thankfully, due to improved technology and medical advances, the lifespan for thalassemics now extends into adulthood. Consequently, serious consideration must now be given to adult care.
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Ice Cream Social
May 6, 2005 Leave a Comment
This was our first event at Children’s Hospital Los Angeles (CHLA), and we were excited to be able to meet the patients, parents, and staff at the hospital.