Author Archive
Informational Packet
Click to download:Â Thalassemia Support Foundation Packet
Informational Brochure
Click to download:Â Thalassemia Support Foundation Brochure
Quick Thalassemia Facts
Click to download:Â Quick Thalassemia Facts
1st Thalassemia Support Foundation Conference
Care for Adult Thalassemics
by Laurice Levine, MA, CCLS
Thalssemia Outreach Coordinator
Children’s Hospital and Research Center at Oakland
(Click here to see Laurice’s talk at the 8th Cooley’s Anemia Symposium)
Thalassemia is a rare and complex disease which in the past took the lives of children prior to their teenage years. Thankfully, due to improved technology and medical advances, the lifespan for thalassemics now extends into adulthood. Consequently, serious consideration must now be given to adult care.
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Ice Cream Social
This was our first event at Children’s Hospital Los Angeles (CHLA), and we were excited to be able to meet the patients, parents, and staff at the hospital.