Over 90 patients, parents, loved ones, and members of the medical community attended the 2nd Annual Thalassemia Support Foundation Conference held on April 21st, 2007 at the beautiful Beverly Garland hotel located only a mile away from Universal Studios. The conference was directed toward Thalassemia patients, parents, and loved ones, as well as members of the medical community. The focus of the conference was to learn about recent advancements in Thalassemia care and to provide a unique opportunity to meet others who are affected by Thalassemia.  Guest speakers were Nancy Sweeters (CHO), Dr. Elliott Vichinsky (CHO), and Dr. John Wood (CHLA).

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Cyclysm Adventures generously contributed $500 from the companies inaugural ride, Conquer Palomar. Over 130 riders participated in Conquer Palomar, Palomar Mountain’s first organized ride. Read the rest of this entry »

This event was for patients, parents, loved ones, and members of the medical community to learn about the new oral chelator, Exjade, along with other important topics in the Thalassemia community. Guest speakers include Dr. Thomas Coates, Dr. Punam Malik, and Susan Carson, R.N. Read the rest of this entry »

This was our first event at Children’s Hospital Los Angeles (CHLA), and we were excited to be able to meet the patients, parents, and staff at the hospital.

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