Helping Patients Find Hope
July 14, 2007 Leave a Comment
On July 14th, 2007 members of our group attended the Lotus Festival at Echo Park in Los Angeles. This event is held every year free to the public to bring entertainment and public awareness of many community services that are available to them.
July 14, 2007 Leave a Comment
2nd Annual Thalassemia Support Foundation Conference
April 21st, 2007
Dr. Elliott Vichinsky
Comprehensive Medical Care in Thalassemia
Note: First slide is long, 1 1/2 minutes; Audio is low
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May 28, 2007 Leave a Comment
Dr. John Wood
Pulmonary Hypertension and Good Cardiac Care
Note: First slide is long, 1 1/2 minutes; Audio is low
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April 21, 2007 Leave a Comment
Over 90 patients, parents, loved ones, and members of the medical community attended the 2nd Annual Thalassemia Support Foundation Conference held on April 21st, 2007 at the beautiful Beverly Garland hotel located only a mile away from Universal Studios. The conference was directed toward Thalassemia patients, parents, and loved ones, as well as members of the medical community. The focus of the conference was to learn about recent advancements in Thalassemia care and to provide a unique opportunity to meet others who are affected by Thalassemia. Â Guest speakers were Nancy Sweeters (CHO), Dr. Elliott Vichinsky (CHO), and Dr. John Wood (CHLA).
August 20, 2006 Leave a Comment
Click to download:Â TSF Newsletter – Volume 1 Issue 1
July 15, 2006 Leave a Comment
Cyclysm Adventures generously contributed $500 from the companies inaugural ride, Conquer Palomar. Over 130 riders participated in Conquer Palomar, Palomar Mountain’s first organized ride. Read more of this post
June 9, 2006 Leave a Comment
by Titi Singer, MD
Hematologist
Children’s Hospital and Research Center at Oakland
Treating severe forms of thalassemia with regular blood transfusions has been an important advance in the management of thalassemia over the past 30 years. Transfusions are given in order to correct anemia (low hemoglobin level) and minimize the other clinical manifestations of the disease, such as bone changes and enlarged liver and spleen. In order to accomplish these goals, most patients require blood transfusions every three to four weeks with a blood amount of 10–15cc/kg (approximately two to three units of blood).
April 20, 2006 Leave a Comment
Click to download:Â Thalassemia Support Foundation Packet
April 20, 2006 Leave a Comment
Click to download:Â Thalassemia Support Foundation Brochure