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TSF Visits the Lotus Festival

On July 14th, 2007 members of our group attended the Lotus Festival at Echo Park in Los Angeles. This event is held every year free to the public to bring entertainment and public awareness of many community services that are available to them.

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Dr. Elliott Vichinsky: Comprehensive Medical Care in Thalassemia

During the conference we captured Dr. Elliott Vichinsky's Powerpoint presentation as well as the audio. View his presentation! **A Java enabled web browser is required! Read the rest of this entry »

Dr. John Wood: Pulmonary Hypertension and Good Cardiac Care

During the conference we captured Dr. John Wood's Powerpoint presentation as well as the audio. View his presentation! **A Java enabled web browser is required! Read the rest of this entry »

2nd Thalassemia Support Foundation Conference

Over 90 patients, parents, loved ones, and members of the medical community attended the 2nd Annual Thalassemia Support Foundation Conference held on April 21st, 2007 at the beautiful Beverly Garland hotel located only a mile away from Universal Studios. The conference was directed toward Thalassemia patients, parents, and loved ones, as well as members of the medical community. The focus of the conference was to learn about recent advancements in Thalassemia care and to provide a unique opportunity to meet others who are affected by Thalassemia.  Guest speakers were Nancy Sweeters (CHO), Dr. Elliott Vichinsky (CHO), and Dr. John Wood (CHLA).

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Newsletter – Volume 1 Issue 1

Click to download: TSF Newsletter – Volume 1 Issue 1

Conquer Palomar Bike Ride

Cyclysm Adventures generously contributed $500 from the companies inaugural ride, Conquer Palomar. Over 130 riders participated in Conquer Palomar, Palomar Mountain’s first organized ride. Read the rest of this entry »

Iron Overload: Extremely Harmful, but Preventable!

by Titi Singer, MD
Hematologist
Children’s Hospital and Research Center at Oakland

Treating severe forms of thalassemia with regular blood transfusions has been an important advance in the management of thalassemia over the past 30 years. Transfusions are given in order to correct anemia (low hemoglobin level) and minimize the other clinical manifestations of the disease, such as bone changes and enlarged liver and spleen. In order to accomplish these goals, most patients require blood transfusions every three to four weeks with a blood amount of 10–15cc/kg (approximately two to three units of blood).

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Informational Packet

Click to download: Thalassemia Support Foundation Packet

Informational Brochure

Click to download: Thalassemia Support Foundation Brochure

Quick Thalassemia Facts

Click to download: Quick Thalassemia Facts