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Author Archive

TSF Helps Fund Thalassemia Retreat

The annual thalassemia retreat was held on November 14-16th in Russian River, California. Twenty five, thalassemia patients, some of them joining for the first time, (including people from Alaska and Ohio) and their spouses, significant others, children, and friends attended the retreat and enjoyed a weekend of bonding with friends, both old and new; sharing culinary talents; playing games; and sharing personal stories while giving and gaining support. Read the rest of this entry »

Patient’s Perpective: Uncommon Threads

by Abby Thorelson 

Whether you are meeting a new thalassemia patient for the first time or picking up where you left off with one from last year, there is an instant deep connection that ties us to each other. Some may see it as an affliction, but I am beginning to see it as a special mark that inspires us to strive to be extraordinary rather than to settle for mediocrity.

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TSF Helps Fund Children’s Hospital Oakland Holiday Party

On December 14, 2008, 175 patients and families with thalassemia, friends of the program, and staff, gathered together for the annual Thalassemia Holiday Party at Children’s Hospital and Research Center Oakland. The Outpatient Center atrium was transformed into Little Italy to celebrate this year’s theme “Viva Italia.” Read the rest of this entry »

Thalassemia Patients Can Receive $100 for Online Discussion

Panel Intelligence is looking for Thalassemia Patients in the United Kingdom, France, Germany, Italy and Spain to join an online discussion to explore opportunities for better patient care and communication. Read the rest of this entry »

Dr. Elliott Vichinsky: Comprehensive Medical Care in Thalassemia

During the conference we captured Dr. Elliott Vichinsky's Powerpoint presentation as well as the audio. View his presentation! **A Java enabled web browser is required! Read the rest of this entry »

Dr. John Wood: Pulmonary Hypertension and Good Cardiac Care

During the conference we captured Dr. John Wood's Powerpoint presentation as well as the audio. View his presentation! **A Java enabled web browser is required! Read the rest of this entry »

Newsletter – Volume 1 Issue 1

Click to download: TSF Newsletter – Volume 1 Issue 1