Events
2011 Thalassemia Action Group Conference at Disneyland
TAG Patient/Parent Conference
Disneyland Paradise Pier Hotel
Anaheim, California
June 24 – 25, 2011
A unique way to gather important new information about thalassemia while meeting other patients and parents who can relate to the specific challenges associated with thalassemia.
For more information, visit: http://tinyurl.com/4doxrhb
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Thalassemia Informational Session at Ceders Sinai Hospital
The information may be very important for you, particularly if your family originates from the Mediterranean Region, North Africa, Turkey, the Middle East, India, Asia and New Guinea.
Dr. Vasili Berdoukas, an international expert on thalassemia and related disorders will present information on the condition, how it is inherited and prevented.
Cedars Sinai Hospital Harvey Morse Auditorium
Tuesday, May 24th 2011 between 7-9pm
Free of charge. Refreshments will be served. All welcome.
Seating Limited – RSVP requested.
3rd Thalassemia Support Foundation Conference
The 3rd Thalassemia Support Foundation Conference was held at the beautiful Beverly Garland hotel located only a mile away from Universal Studios. This conference is directed toward Thalassemia patients, parents, and loved ones, as well as members of the medical community. The focus of the conference is to learn about recent advancements in Thalassemia care and to provide a unique opportunity to meet others who are affected by Thalassemia.
TSF Visits the Lotus Festival
On July 14th, 2007 members of our group attended the Lotus Festival at Echo Park in Los Angeles. This event is held every year free to the public to bring entertainment and public awareness of many community services that are available to them.
Dr. Elliott Vichinsky: Comprehensive Medical Care in Thalassemia
Dr. John Wood: Pulmonary Hypertension and Good Cardiac Care
2nd Thalassemia Support Foundation Conference
Over 90 patients, parents, loved ones, and members of the medical community attended the 2nd Annual Thalassemia Support Foundation Conference held on April 21st, 2007 at the beautiful Beverly Garland hotel located only a mile away from Universal Studios. The conference was directed toward Thalassemia patients, parents, and loved ones, as well as members of the medical community. The focus of the conference was to learn about recent advancements in Thalassemia care and to provide a unique opportunity to meet others who are affected by Thalassemia. Guest speakers were Nancy Sweeters (CHO), Dr. Elliott Vichinsky (CHO), and Dr. John Wood (CHLA).
Conquer Palomar Bike Ride
Cyclysm Adventures generously contributed $500 from the companies inaugural ride, Conquer Palomar. Over 130 riders participated in Conquer Palomar, Palomar Mountain’s first organized ride. Read the rest of this entry »
1st Thalassemia Support Foundation Conference
Ice Cream Social
This was our first event at Children’s Hospital Los Angeles (CHLA), and we were excited to be able to meet the patients, parents, and staff at the hospital.